Wandering

Wandering

This has never been a challenge in our lives, but I’ve heard of it, and read the tragic stories in the news. How hard it is to balance safety with self-reliance; understanding that there’s a desire we aren’t aware of or don’t recognize, but that is clear to the person who “wanders”; to not take away anything to ensure safety, but to find safe ways to make more possible. 

The “other” kind of expert

The “other” kind of expert

“From the parenting perspective, I fail to understand how anyone would not benefit from a little ‘insider’ knowledge on what their child might be living.  After all, many of them are living similar things.”

– Who could ask for a better resource than those who HAVE and ARE living as autistic in a neurotypical world – who share their neurology with our children? We neurotypical parents can only guess – autistic adults KNOW.

Discrimination

This post is very important for every parent of an autistic child to read, especially parents of non-speaking children. And I wish Autism Speaks would think about this when they put together their fearmongering videos with parents saying they feel like killing themselves and/or thier children IN FRONT OF THEIR CHILDREN.

Into The Woods: Children will Listen (lyrics)

Careful the things you say, Children will listen;

Careful the things you do. Children will see and learn;

Children may not obey, but children will listen;

Children will look to you for which way to turn;

To learn what to be.

Careful before you say “Listen to me”, Children will listen;

Careful the wish you make, Wishes are children;

Careful the path they take, Wishes come true, not free;

Careful the spell you cast, Not just on children;

Sometimes a spell may last, Past what you can see

And turn against you. Careful the tale you tell;

That is the spell. Children will listen.

Emma's Hope Book

In Emma’s RPM session yesterday with B. on the topic of discrimination, Emma wrote, “Autism voices have been silent.” (Emma initially typed “silenct and then she edited that to “silent”.)   B. encouraged her to write more, asking her what she suggested.  Emma wrote, “take time to try and learn from us instead of staring at us like we are garbage.”

When she wrote the word “garbage” I felt sick to my stomach. This, from my twelve-year-old daughter.

I remember when my father would call me into his home office to scold me for my latest infraction.  I remember the shame I felt.  I still remember the tingling feeling of rebellion mixed with self-doubt when I noticed the disapproving stare of a stranger upon seeing my outfit – a crop top and pair of cut-offs that I’d smuggled into my backpack to wear to go shopping with a friend after school…

View original post 199 more words

I’ve changed my mind

I’ve changed my mind

As a parent of an autistic child I consider myself lucky that the Temple Grandin movie was my most recent exposure to autism. I had seen Rainman in my 20’s but it was just a fuzzy memory when my son was diagnosed.  Temple’s struggles, experiences, triumphs, shared perspective, and explanations of what autism was/is to her gave me positive foundation on which to parent my child. The blogs of parents who share a similar journey and attitude, and the blogs of autistic adults have given me even more information, hope and courage to support my atypical child. I am forever thankful that.