Fear, Loathing, and Autism Speaks

“You have been given a beautiful, rare, intense, precious responsibility. Do not screw this up.” Traveling Monkey

me – Autism Speaks – Corporate – YOU’RE SCREWING THIS UP.

Traveling Monkeys

Trigger warning: fear-mongering, ableism, othering of autistic people.

*****

A little more than two years ago, I began to wonder.

A little more than a year ago, we pushed beyond our initial pediatrician response and reached out to specialists.

On Valentine’s Day, 2013, Margaret received an official diagnosis of classic autism.

*****

Ten days prior to Margaret’s diagnosis I watched a military doctor at RAF Lakenheath administer the ADOS test, the final component of the diagnostic process. I had, I thought, made peace with the idea–we had been told months earlier by a developmental pediatrician that we should “begin to prepare” ourselves for a diagnosis. The occupational therapist we saw prior to that was relieved we had said the word “autism” because that meant “I can say it too. We can’t mention it unless the parents do if there’s no official diagnosis. Parental reactions are too incendiary.”

Too incendiary. Remember…

View original post 1,044 more words

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