Birthday parties, Pinatas, and Expectations

I’m not sure if I’m making a big deal about something insignificant, but my gut says this is important – that it’s a “minor” illustration of an important thought process my autistic son has, and that I need to help him work through to navigate through these situations in the future.

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I’m not entirely sure how I found it. Possibly it was through the Autism Speaks website, as that was my first encounter with advocacy as a parent of an autistic child. I’ve only been in the autism “mix” for a couple of years and Autism Speaks has been shifting from a cure focus to an awareness focus (this wasn’t always the case). That’s how I found “A Diary of a Mom” (DOAM). DOAM is a wonderful blog, written by a mom of 2 girls – one autistic and one NT. I read the entire 5 years in two weeks and it was a game changer for me.

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the mama gut

A very powerful post about respect: respecting yourself enough to listen to your gut, especially where your child is concerned; respecting your child enough to understand that behavior is communication, and that they have feelings, opinions, needs that need to be acknowledged and acted upon.

Connecting with Community

When I first received my son’s diagnosis, I wasn’t aware of a lot of support. The school district was very helpful, thank goodness. And his symptoms are not very apparent at home. I didn’t think I needed the community. But once we hit school age, that changed. I felt a bit adrift. What do I need to do for him? What kind of supports are out there? Has anyone else dealt with this before? What if I miss something? Continue reading